By Miriam Lippel Blum
Here are the CKD related blogs updated since my update on 4/30. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Blog update; Bill refutes skeptics regarding H1N1 flu , points out how vulnerable incenter hemo patients are, and chastises centers that have inadequate emergency preparation (Unfortunately, this is likely most of them. This should be a wake-up call. Even if this round of flu eases up we must be prepared for pandemics.)
- Kamal Shah's Blog Kamal enjoys devotional Sufi music and provides a link to a Hindi karaokie site; gets too much information on Facebook.
- Kaply, Inc. has been spending some time outdoors on the patio enjoying cold drinks;
- Toastiest Mom's attempts at making Toastiest feel better about dialysis aren't helping; so she turns to Herman, her dog, for some video inspiration. He wasn't too motivated. (But he is a sweet looking dog with a fine orange collar.)
- Hasten down the wire reports on the Merck companies fake medical journals; and yearns for a more European type social system.
- The Life of a 20-Something With Lupus has problems with her phone lines (Don't you hate when that happens?)
- Nitey Nite- a nocturnal dialysis blog hates having to deal with new personnel and staff turnover in her unit is frequent. (It is hard having to adjust to the newbies all the time and losing continuity of care is a serious safety issue.)
- Becky Perry discovers her weakness was due to dehydration and adjusts fluid and treatment accordingly.
- CHRONIC POSITIVITY - Life with Polycystic Kidney Disease Her sister received a new kidney and is doing well (Congratulations! May it work well and last a long time.); and reflects on the anniversary of her own kidney transplant how her life and health has improved.
- Transplant Alliance reports on a transplant bowl-a-thon; has a slight headache.
- Kevin’s Blog has the dramatic birth story (with photos) of Kevin and Lisa's new baby named Faith Randall Carlson. She was born at 12:03 PM on 4/28/2009, weighed 8 lbs, 11 oz, and was 20.5″ long. She is named in honor of brother Randy, who was Kevin's kidney donor. (She is a beauty! May she always be healthy, happy and a blessing to her parents. Congratulations!)
- Life on Dialysis finished her dissertation and celebrates with drinks and dancing.(You go, Girl! Congratulations!)
- Dialysis Postings has concerns about swine flu and even though it isn't yet in the Phillipines thinks it important to be prepared.
- Chronic Chick Talk is making adjustments to her blog site; and shares a music video.
- Dialyse This might get a kidney in a year or two and is ambivalent.
- Bud's Ramblings need hypoallergenic bandaids for his medication port and worries whether a needed medication will be approved by his insurance.
- Disability Prejudice And Civil Rights Watch writes more about psychophobia which he defines as individual prejudice and discrimination against people with or who are perceived by others, correctly or not, to have a psychiatric history or diagnosis; an article on the possible dangers of reevaluation counseling; a lengthy post on the polarity in mental health politics.
- Precious Bodily Fluids reports on a small controlled trial of prednisone, cyclophosphamide, and cyclosporine in lupus membranous nephropathy; and comparative studies of clevidipine to nitroglycerin, sodium nitroprusside, and nicardipine for acute hypertension treatment in cardiac surgery patient; the FDA approves a polypill (three meds in one pill) for hypertension.
- Uremic Frost the FDA "cuts" Hydroxycut because it causes life threatening liver problems; development of a possible urine screening test for coronary artery disease; a study from New South Wales showed the risk for lung and urinary tract cancers, but not prostate cancer, was higher among men with kidney disease; a study that reports Hispanic dialysis patients suffer from a higher incidence of catheter related bacteremia compared with African Americans; and last,a study that seems to show that hyperuricemia appears to be and independent risk factor for all-cause and CVD mortality, but not kidney failure.
- Renal tsar's blog a Q & A about hemo nurses and work permits;
- Diario de diálisis Crónicas (en Español) Journal dialysis - Chronicles (Google translated from Spanish)More on the psychology of dialysis patients but feels there is not enough research done in this area.
- Free range fish sticks Sheila is driving herself to Tennesee for some "nana" time that she badly needs.
- Neophron's Senescence enjoyed the Admiral's Lounge on his route back home and hopes to go back to Singapore sometime.
- pkdmom2five updates on family activities and has an upcoming blood test scheduled.
- Mid-life ramblings exhausted herself with gardening and ended up late to dialysis because she slept through her alarm clock.
- Chronicals of the PD Warrior finds some fun websites and blogs: a pen reviewer, a person who is an expert in travel packing, and a video of an extraordinary bicyclist (Very fun, check it out!); and is crazy about Susan Boyle.
- As The Pump Turns has coffee served by half naked waitresses; and notes the fifth anniversary of a life changing time.
- Kim Hoben's Blog frustrations with getting a kidney.
- Living with PKD a post on pregnancy and belly buttons, also her kidneys have more cysts causing discomfort; forgot to do her 24 hr. urine collection and has a medical appt. in Boston for more tests.
- Biologically Safe Water Filters reports on a study showing the tremendous savings for US hospitals from preventing hospital acquired infections.
- Encompass Network Partners diseased leg arteries may trigger heart attacks and strokes; the importance of diabetics having foot exams.
- Kidney Community Emergency Response resources for emergencies - including swine flu are on the KCER website.
- I'm-u-no-logic after a long writing hiatus, I'm-u-no-logic returns with an intense poem about frustration with healthy visitors who waste what they have.
- The Renal Unit current renal twitters, news, and blogs.
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