By Miriam Lippel Blum
Here are the CKD related blogs updated since my update on 6/24. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle has a blog report.
- Kamal Shah's Blog Kamal has difficulty determining dry weight and gets hypotensive; hails two decisions by the Indian government.
- Kaply, Inc. Tracy got her Kindle and explains all its benefits; is already sick of not being able to use her arm and anticipates more difficulties.
- The Life of a 20-Something With Lupus The city is hot and there's a garbage strike but her lab values are great; talks about the impact Michael Jackson's life and death had on her.
- Becky Perry finds You Tube to be a source for beginning drum instruction for her son; encourages participation in "Friday Felicities" where you count your blessings.
- Life on dialysis ... and now life after my transplant! is 8 months post-transplant, received awards, passed her dissertation and shares photos from this month; has a splendid time at a concert.
- On the Road to a Cure has an article about designing a social life around the limits of lupus (This could apply to any chronic disease.)
- I Am. Are you? reminds that the NKF-Illinois Gift Of Life Walk is June 28th.
- Transplant Alliance celebrates a "Lung-versary" next week and looks for items with green ribbons; an article about Canada's first live kidney swap -- four transplants at once.
- Life on Dialysis The monsoons are here and he plans outdoor treks.
- Chronic Chick Talk bought some tomato and green pepper plants to put in her garden; gives a link to stylish maternity clothes; says goodbye to Michael Jackson, notes that he had lupus and wonders if that contributed to his cardiac arrest; she finds and shares a link to online coupons for lots of items.
- Bud's Ramblings shares family photos.
- Disability Prejudice And Civil Rights Watch notes that a psych hospital in Philadelphia has safety violations after a for-profit company takes it over; deals with small-town gossip by creating rumors and gossip about herself.
- Precious Bodily Fluids links to a blog that containing nothing but the most hilarious journal articles from PubMed.
- Renal Fellow Network a book makes the case that Tiny Tim (from A Christmas Carol) had Renal Tubular Acidosis; there is evidence showing that terlipressin can be a treatment for Hepatorenal Syndrome; a quick review of of what different types of urine crystals (causing nephrolithiasis) look like under the microscope.
- Uremic Frost a bear visits a dialysis center in Ohio; the difficulties of a diabetic renal diet; a study showing that contrast induced nephropathy is not benign and has long-term effects; DaVita opens its 1500th outpatient dialysis clinic in Gulf Shores, Alabama; a study concludes that the risk of hospitalization and death with pneumonia is greater at lower eGFRs, especially in younger adults. This association may contribute to excess mortality in people with CKD; scientists find that the genes of the Goby fish may help them locate genes in humans that control high blood pressure.
- pkdmom2five reminisces about her Granny; couldn't find assistance from anyone at Walmart; and a cute photo of her son.
- Lemonade and Kidneys announces a date for a PKD fundraiser, October 2, 2009.
- The Ballad of Billy The Kidney discusses the rise of "good Samaritan" websites permitting those waiting for kidney transplants to solicit donations, has grave reservations about the concept; criticizes the US government for focusing money and attention on the switch to digital television instead of universal health care issues (It certainly does show skewed up values, IMO, too.); critiques an article about a woman who pays a man for his kidney and the growing "medical Imperialism."
- The inner game of PKD a new blog to us written by Richard Perl who seeks to help PKD sufferers navigate the inner, psychological journey that chronic illness brings. His latest post is about minimizing the power of the “negative imprint”(old bad memories that stick with you).
- Unfiltered Hope is disappointed that two potential donors turn out not to match her husband but continues to hope the right person will be found.
- Biologically Safe Water Filters New special considerations regarding dialysate quality for acute hemodialysis have been issued by ANSI/AAMI
- Renal BizBlog Details some of the changes to the ESRD program in the House Healhcare Reform Proposal, and a link to the entire proposal.
- The Renal Unit Latest renal tweets, news, and blogs.
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