By Miriam Lippel Blum
Here are the CKD related blogs updated since my update on 6/6. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Peter starts his NxStage training, has issues with air bubbles and a plastic taste; Bill explains his medical situation (We are all rooting for you, Bill.)
- Kamal Shah's Blog Kamal likes Jay Leno and talks about an Indian equivalent.
- Kaply, Inc. has her first trip to Trader Joe's and buys crackers and cheese; her friends help her out and she buys an ice bag.
- Toastiest wonders why the man who killed the abortion doctor isn't treated like a terrorist.
- Stayin' alive writes about a wonderful group of knitters who have eased her isolation and replaced her yarn lost in a flood.
- Becky Perry reviews Sister Chicks in Wooden Shoes; has a new look to her blog (Very nice photo, Becky) and reviews a Christian romance novel, A Passion Denied.
- On the Road to a Cure Lupus Now! magazine wants to know your favorite autumn and winter family traditions, link provided.
- Really, I'm as Old as I Feel? updates on almost 2 yr. old Abby's skills (Really cute!)
- I Am. Are you? provides a comprehensive list of links to official Donate Life affiliated organizations that have a presence on the social media platforms.
- Life on Dialysis Mumbai's summer heat causes problems with fluid levels and blood pressure, he awaits the cooling monsoons.
- Chronic Chick Talk writes about finding peace with chronic illness; finds a perfect Father's Day gift.
- Bud's Ramblings is looking forward to some visitors.
- Disability Prejudice And Civil Rights Watch has music video Keep Breathing by Ingrid Michaelson; links to stories about: a mental health advocate fighting for the right to hospice care denied by her insurance, the Alaska Supreme Court grants mental patients Constitutional Rights, and a demonstration protesting the death of a woman who was neglected at a hospital; a lovely tribute to his Dad's 82nd birthday which includes a video of a Woody Guthrie song; a music recording of Pete Seeger singing "Gedanken Sind Frei."
- Precious Bodily Fluids links to a demo of an online database he likes called Dabble DB;
- Renal Fellow Network a study shows no difference in depression and QoL measures between CKD4 and CKD5, all were traditional 3x/week hemo patients, Simon wonders whether DSEN readers would want to know about comparing home hemo dialyzors with the other groups. (You're darn right we would!); another study shows that diagnostic information from renal biopsies on people over the age of 80 had potential to modify therapy in 67% of the cases, particularly those with acute kidney injury or nephrotic syndrome; a recent study suggests that a combination of aspirin and dipyridamole can improve access patency rates by a modest but significant amount.
- Uremic Frost a sleep study shows a link between lack of sleep and hypertension.
- Renal tsar's blog a patient survey shows the importance of transport to people receiving regular hemodialysis; a link to a discussion regarding what steps the government is taking to encourage f self-care and home dialysis; a link to a truly excellent speech given by CKD patient, Jonathan Hope, on end of life care. (One of the best presentations I have heard on the subject.)
- Diario de diálisis Crónicas (en Español) Journal dialysis - Chronicles (Google translated from Spanish) while out of town on business, Alejandro is called about a potential transplant, and has a heck of a day.
- pkdmom2five has a cute photo of toddler fishing; her biopsy results were normal.
- Lemonade and Kidneys has photos of yummy things she made over the weekend (I have to take more insulin just looking at them!); announces the winner of the toy giveaway.
- Phoenix27 Summer is over in Singapore and is trying to make sense of his life.
- Mushroom's Blog posts a fine photo of him taken by his nephew Jonathan.
- I need a kidney The days before each clinic visit are fraught with anxiety as Jason's transplant deteriorates; writes about his first donor and the evaluation process.
- DailyHemo - Home Dialysis Advocates New Video: Mr. McDowell Demos His Home Dialysis Machine. (It's the NxStage System One.)
- Renal BizBlog reports that a legislative committee rejected cutting dialysis for Medi-Cal patients in California. (The vote takes place tomorrow or the next day. Let us hope and pray that they don't end the lives of 80 people on dialysis to balance the budget.)
- The Renal Unit Latest renal tweets, news, and blogs.
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