By Miriam Lippel Blum
Here are the CKD related blogs updated since my update on 6/30. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Bill reports on how Singapore dialysis units are preparing for H1N1, hopes the US will follow suit; Peter writes a moving tribute to Kelli, a nurse, who worked with him and later, dialyzed by his side. She passed away unexpectedly and became an organ donor continuing her legacy of life and giving. (Our hearts go out to you and Kelli's family on this great loss.)
- Kaply, Inc. Tracy''s arm pain increases, surgery isn't yet scheduled, wants to hurt upstairs neighbors; Tracy does some yelling at the personnel at the doctors office; surgery now scheduled for July 10 (Sometimes a little yelling gets things accomplished, I guess.), got a card she liked,
- Hasten down the wire comments on the story about the Washington Post offering health-care lobbyists access to members of the Obama administration, Congress, and Washington Post editorial staff for fees ranging from $25,000 - $250,000. (This is what we call health-care reform?)
- The Life of a 20-Something With Lupus celebrates Canada Day going out with her Mom.
- Becky Perry makes smoothies with frozen strawberries, orange juice and banana; has her lesson planning sheet available for downloading; a book peek into Be Hopeful by Warren Wiersbe; lists five blessings in her life; and a recipe for Skillet Enchiladas that her family loves.
- Jack's Kidney Adventure Jack gets a talking pocket watch to remind him to take his transplant meds on time; meets a former Fresenius social worker and they talk "shop," he enjoyed chatting with someone who understood renal issues.
- Life on dialysis ... and now life after my transplant! is looking into putting on a really large fund raising event for her organ donation campaign; gives a successful talk to school students, and shares some photos and a link to the magazine cover she is featured on.(Great picture, Holly!)
- On the Road to a Cure has important information about how lupus can affect your skin.
- The Daily Dialysis Bonni feels she is not adjusting to dialysis as well as her husband is, his labs are still not right and he feels fatigued.
- I Am. Are you? Morgan D'Organ attends a birthday party.
- Transplant Alliance A medical student looks for a thesis topic on transplantation; a link to a video about a special hi-tech container for transporting kidneys that helps keep them in better shape until transplant.
- Chronic Chick Talk has a photo of flowers.
- Lupus and Humor provides a link to a great resource for finding a healthy sunscreen. (Important for those with lupus and everyone else.)
- Bud's Ramblings He buys gum for a friend, finds a missing knife, and plans to see a doctor about his sinus coughing issue.
- Disability Prejudice And Civil Rights Watch Alison points out fabrications in her medical records made by psychiatric personnel; mocks the name change of a governmental department as it really is meaningless; makes the case that medical professionals shouldn't talk about "recovery" from mental illness until they stop using shame,blame, threats and force with people; links to an article about psychiatrists lamenting the diminished use of psychotherapy because it is a useful therapy.
- Precious Bodily Fluids shares a link to a cool article on aphorisms by Hippocrates; a study disputes the July phenomenon (rise in mortality in the month medical interns start their rotations); a funny video made by medical students about diagnosing Wenkebach syndromes (problems with the heart's electrical conduction systems.)
- Renal Fellow Network gives examples from the same Hippocrates article mentioned above; a paper in the NEJM presents a major breakthrough in understanding the pathogenesis of membranous nephropathy and nephrotic syndrome. (Way beyond me but good for the medically astute.)
- Uremic Frost reports the FDA approved a new iron drug, Feraheme, that takes much less time than current therapies (such as Venofer or Ferrlecit); a study shows that renal cell carcinoma lesions are more likely to be central in location; a study shows that early blocking of the renin-angiotensin system in Type 1 diabetics does not delay nephropathy; wishes Happy Birthday to a 100-year old dialyzor in Michigan (Amazing and wonderful to hear about!); the same music video as mentioned in Precious Bodily Fluids above; link to a podcast by Kidney International that focuses on a possible genetic link between African Americans and CKD.
- Neophron's Senescence has a lot of books to read.
- pkdmom2five has a day full of doctor appointments; shares a photo and writes about the dream house she would like to live in.
- Kidney Notes - Exploring the Intersection of Medicine and Technology has a link to a mindmap showing the structure of the kidney; a graphic of a brain with atherosclerosis.
- Nathan's PKD His echocardiogram was okay but his doctor wants to do a stress test, too, since he gets out of breath with exertion.
- My Damn Kidneys Here's a link to his new blog My New (Transplanted) Kidney
- Writings along the cave walls - Ashbat's Lair has a M-W-F dialysis shift and hates it, but does like Sat. off.
- Biologically Safe Water Filters Nephros received FDA approval for the Dual Stage Ultrafilters to be used to filter biological contaminants from water and bicarbonate concentrate used in hemodialysis procedures. This filter will help dialysis providers address microbial and endotoxin contamination of water and dialysate concentrate.
- Kidney Community Emergency Response "Win Big With Quality: Raising ESRD Care to a New Level" is the theme for.the Florida ESRD Network's 2009 Forum, Nov. 15-17 It will focus on CMS goals of protecting patient safety, enhancing ongoing quality improvement, and improving patients’ experience of dialysis care.
- Bridge of Life A dialysis center that will cater especially to indigent patients will soon open at the Pangasinan Provincial Hospital in Barangay Bolingit in San Carlos City, in the Philippines.
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