By Miriam Lippel Blum
Here are the CKD related blogs updated since my update on 7/8. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle has the blog report.
- Kaply, Inc. Tracy's Medicaid was reinstated for August but her surgery is tomorrow and she has no idea how she is going to pay for it. (We hope all goes well,); Tracy's friend, Renn, guest blogs while Tracy is out having surgery. She writes about her young daughter's creative writing.
- Birdman is setting up appointments for heart tests but also to have his non-functioning transplanted pancreas and kidney removed to get ready for new transplants.
- Hasten down the wire explains how President Obama’s approach to reforming healthcare is to obtain minimal cost growth slowdowns from insurers and providers with one hand while doling back enormous amounts of cash with the other.
- Becky Perry has a peek into The Power of Praying for Your Adult Children by Stormie Omartian; recommends going slow the first week of home schooling and checking out a helpful link she provides to get new curriculum ideas.
- Life on dialysis ... and now life after my transplant! Holly speaks to another high school and shares her and another transplant recipient's talks; gets ready for her vacation and shares the transcript from an interview she gave.
- Let us Consider One Another gripes about the US government.
- On the Road to a Cure gives a link to the New York Times website's Patient Voices series which is featuring the stories of people from across the country who are affected by lupus.
- I Am. Are you? has a must-see video on organ donation and a link to another. (Both videos brought tears to my eyes.)
- Dialysis Postings writes about Hepatitis and the Dialysis Patient.
- Lupus and Humor ponders whether Michael Jackson had lupus. (Probably.)
- Bud's Ramblings notes that he hasn't seen many butterflies this summer, had a follow up CAT scan of his lungs but no results yet, and looks forward to fresh squash casserole this evening.
- Disability Prejudice And Civil Rights Watch Alison describes several of the awful things she experienced and observed in the psych. unit.
- Precious Bodily Fluids shares extensive handouts from his first two lectures to his medical students.
- Renal Fellow Network reports that transplant patients with native ADPKD kidneys who were given an immunosuppressant regimen containing the drug rapamycin (sirolimus) displayed less cyst growth than those who did not receive rapamycin; chemists from Ohio University have succeeded in harnessing the power of urine to drive a hydrogen fuel cell (Next, a pee-powered automobile. Fill 'er up at your nearest urinal!;
- Uremic Frost An eight-way kidney transplant exchange sets a new record; writes about the Ohio chemists (see above blog) but also links to an article about pee-powered batteries already on the shelves in Japan (Now let's all sing "Urine the money..."); a study in the British Medical Journal shows that late referrals to nephrologists are associated with higher mortality and higher rates of admission to hospital among kidney patients, and with lack of permanent access for haemodialysis and early failure of arteriovenous fistulas, as well as decreased quality of life. (No surprise there, but with the push for primary care docs to handle everything to avoid more expensive specialists, it's going to be hard to change.)
- Renal tsar's blog attended a conference where it was noted that few patients in dialysis units had registered for the end-of-life information available and makes suggestions as to how to increase awareness of the program; discusses whether or not PKD patients should generally be screened for aneurysms that might rupture.
- pkdmom2five makes an appeal for prayers for her Kentucky cousin who was severely injured in an auto accident. (We all hope for his recovery.)
- The inner game of PKD writes about the importance of finding a positive spin to your PKD story.
- Nathan's PKD is frightened about his pending cystoscopy and writes a prayer to God.
- I need a kidney gives a link to the story about the record breaking eight at one time transplant chain.
- DailyHemo - Home Dialysis Advocates Many new videos to view here -- Procedure: Peritoneal Catheter Insertion; Young Scientists Working on Peritoneal Dialysis Research; Tips: Avoiding Peritonitis When You Have Pets; Peritoneal Dialysis in the Ukraine; Spanish: Dialisis Atomizada; Spain: Dialysis Report; Caracteristicas Dialisis Peritoneal Automatizada; Chronic Kidney Failure: Treatment.
- Biologically Safe Water Filters suggests that their water filter will reduce inflammation caused by poor water quality, as mentioned in a recent letter by prominent nephrologists to the US Healthcare Reform Director.
- Encompass Network Partners has developed a Web-based application that aids clinic staff in performing foot checks and connects clinics with a network of foot-care specialists. Standardized screenings will identify those with foot ulcers who are at risk for amputation.
- Kidney Diet Tips has an article on fish oil supplements and kidney disease.
- Bridge of Life reports that the first clinical team from Bridge of Life-DaVita Medical Missions arrived in the Philippines, and updates on the progress of the preparations for opening the dialysis clinic in San Carlos City.
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