By Miriam Lippel Blum
Here are the CKD related blogs updated since my last report on 10/10. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Brian Steele-Sierk, who has Type 1 diabetes and CKD5, points out excellent lessons that CKD5 care could learn from the advances in diabetes care. (I think if the medical community stopped thinking of CKD5 as "End Stage Renal Disease" (ESRD) and realized that those of us with CKD5 don't have to be at the end of our lives if we have optimal dialysis then maybe things would be more likely to change.)
- Kamal Shah's Blog Kamal has a video of his going down the natural water slide at Chaparai; describes the difficulties involved in getting dialysis when he is away from home and how he managed when he skipped treatment on his recent vacation.
- Kaply, Inc. Tracy has done all her Christmas shopping except for her Grandma who is hard to shop for; Tracy's doctor want to treat her chronic sinusitis with steroids and antibiotics or surgery, Tracy expects the steroids to make her psychotic.
- Toastiest tried a new dessert at a Greek restaurant; links to a story about a 4-month old baby being denied health insurance; linked his blog to Facebook; posts an open letter to the Davita staff at his center whose poor planning causes scheduling problems resulting in their rushing Toastie at the end of his treatment.
- Stayin' alive Kathy finds wearing her prosthesis is a lot of work so she often doesn't wear it even as she realizes it is the key to more independent living, she is knitting many items for a charity bazaar.
- Hasten down the wire comments on the reauthorization of three sections of the Patriot Act by the Senate Judiciary Committee
- Becky Perry posts some links she likes; does the best she can despite health and financial problems, finds that she enjoys and is good at home schooling; reviews Things Worth Remembering by Jackina Stark.
- Jack's Kidney Adventure Jack has a reunion with old friends, has a quick review of major blog moments.
- On the Road to a Cure Amanda Davenport continues her guest blogging about Hell's Kitchen.
- I Am. Are you? 20-year-old Columbia College student Bill Coon shares his thoughts as he waits for a heart transplant.
- Kevin’s Blog Kevin shares a letter written for his daughter's dedication ceremony in his church.
- Bud's Ramblings Bud had a tasty dinner and family visitors.
- Renal Fellow Network posts on dietary measures which have been shown to reduce the risk of nephrolithiasis (kidney stones); acid-base issues related to eating disorders; the electrolyte composition of the Red Sea.
- Uremic Frost An article concludes that physical inactivity leads to an increased mortality in CKD patients (Time to exercise, Everyone!); preferred medications for pain control in CKD.
- pkdmom2five writes a response to an anonymous letter writer.
- Dialysis and Me posts a photo of his workspace and some of the model soldiers he is working on.
- Kidney Notes - Exploring the Intersection of Medicine and Technology has a photo of a sign precluding healthcare practitioners from Minnesota, Vermont, or Massachusetts from eating the munchies at a pharmaceutical company exhibit; a med/peds hospitalist writes on resources for nephrology; medical students at the University of Medicine and Dentistry, New Jersey required to have an Apple iPhone or iPod touch (I guess smart phones make smart docs?); an updated the list of kidney diseases for patients.
- Michael W. Newman is very concerned that this weekend a technician trainee will be the only tech available at his HD unit. (I would be scared. too. Time to file a complaint with the Medicare Network again.)
- PKD World has a link to an article about why people choose to become live organ donors; links to PKD blogs.
- Kidney Community Emergency Response Unomedical Inc., a manufacturer of medical devices, today announced that it is conducting a voluntary recall of certain units of the single-patient use Manual Pulmonary Resuscitator (MPR).
- Libre Clothing has a photo of a happy dialyzor wearing Libre's women's oxford button-up shirt.
- NephrOnline Blogs CMS is likely to delay full implementation of CROWNWeb Project until March 2010 due to bugs in Version 1.2 of the program and complaints by small providers of the labor-intensive data delivery process.
- Team Teddy Bear photos from the 2009 Hudson Valley Walk for PKD.
Comments