By Miriam Lippel Blum
There are 32 days left to make your comments to CMS regarding the proposed payment rules. Make your voice heard! It matters.
Here are the CKD related blogs updated since my last report on 11/12. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle has the blog report.
- Kamal Shah's Blog Kamal discusses the pros and cons of using lidocaine on his buttonhole sites to reduce cannulation pain, decides to use a little and that helps him immensely; he reflects on his blogging experience after reaching his 400th post. (Congratulations, Kamal!)
- Kaply, Inc. Tracy describes her post-sinus surgery week and doctor appointments, pretty yucky times, is not allowed to lift anything yet which is fine with her as she is still exhausted and dizzy.(We're sorry you feel bad and hope that things will improve. Thanks for posting something so we knew you were alive, as we in the dialysphere do worry about you.)
- Toastiest posts a music video from The Cure.
- Birdman shares photos from a reunion with dear friends; describes an Oliva cigar tasting he attended; went on a date with his wife to see A Christmas Carol in IMAX 3-D, gives a review of the movie.
- The Life of a 20-Something With Lupus Flo makes an appointment with her dialysis clinic to get her H1N1 flu vaccination.
- Becky Perry reviews A Prisoner of Versaille by Golden Keyes Parsons.
- On the Road to a Lupus Cure announces that the LFA Lupus Advocacy Day on Capitol Hill will be held on March 15 -16, 2010; the "Could I Have Lupus? awareness campaign ranked #1 for Outdoor Donated Media Dollars.
- Chronic Chick Talk bought makeup to cover the lupus-caused butterfly rash on her face; used to dislike tennis but now enjoys it very much.
- Bud's Ramblings Bud worked in the garden, went to the mall, got through dialysis without cramping.
- Linda Gromko MD kidneycare Linda suggests caregivers formulate a list of what their personal "minimum daily requirements" are for their own care.
- Precious Bodily Fluids critiques data presented by UpToDate on the protein-to-creatinine ratio.
- Renal Fellow Network Last week's poll showed general support for the Kidney Allocation Score which is an alternative method proposed for matching organs to recipients; discusses metformin-induced lactic acidosis; the mechanism of aminoglycosides toxicity.
- Uremic Frost A study reiterates that there is no clinical benefit from revascularization in patients with atherosclerotic renal vascular disease; a Medpage audio report on renal artery stenosis.
- UKidney A study shows that dialysis patients with low body fat are at increased risk of death—even compared to patients at the highest level of body fat percentage; a study has reported that growth retardation in pediatric dialysis patients (the propensity for children to not achieve normal height) can be improved by a type of dialysis known as daily on line hemodiafiltration.
- Dialysis and Me Barry aims to lose 10 pounds and get back into shape.(You can do it, Barry!)
- Kidney Notes - Exploring the Intersection of Medicine and Technology links to a blogpost by Merlin Mann about Marco Arment.
- The inner game of PKD Richie asks, "What do PKD patients want?"
- 3 1/2 Hours of Free Cable Jason gives a vivid description of what his first day on in-center dialysis was like; when he gets down at dialysis, Jason thinks about others who have worse problems, particularly his grandfather who suffers from dementia.
- Michael W. Newman Much to his chagrin, Michael's HD unit goes back to an unsafe 8 to 1 patient/staff ratio.
- PKD World Research shows that preemptive kidney transplantation is associated with lower risk of rejection and graft failure in patients with PKD.
- Kidney Diet Tips discusses the importance of early phosphorus control in CKD.
- Unfiltered Hope Two beautiful posts entered here after a long silence. On the anniversary of Darren's now failed transplant, Sara posts a poignant letter from the friend who donated a kidney seven years ago to Darren, wherein she wishes that this anniversary date could become a celebration again with another kidney for Darren; late afternoon the same day, Darren gets the call that a kidney is available, he's first on the list, it's a good match, and he is transplanted the next day. (What an amazing and happy story! We wish you, Darren and this kidney a long, healthy and happy life together.)
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