By Miriam Lippel Blum
Here are the CKD related blogs updated since my last report on 12/15. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Bill shares the comment he sent to CMS about the Proposed Payment System and notes the lack of trust evident amongst all the stakeholders.
- Kamal Shah's Blog Kamal wishes that he had been able to travel and see the world but CKD5 ended that dream for him at the age of 22 (Maybe you can go on a dialysis cruise sometime like a whole bunch of NxStage users are in a couple of weeks.); he had a DEXA scan which showed he does not have osteoporosis so that is not the cause of his bone pain, the pain is now impinging on his ability to do daily activities.
- Kaply, Inc. Tracy's phone is on the fritz and she is really mad about it, so watch out; gets her phone replaced, her surgery went well, and does weird things when under the influence of pain meds.
- Toastiest Toastie posts videos of Howard Dean and Al Franken talking about the healthcare reform bill; a video of Al Franken pwn-ing Joe Lieberman.(If you don't know what "pwn" means, go Google it, like I did...and I dare you to pronounce it.)
- Hasten down the wire Michael is disgusted with Chase's penalization of responsible credit users; explains why he is replacing his TiVo system and with what; critiques the Huffington Post's new online publishing business model.
- CHRONIC POSITIVITY - Life with Polycystic Kidney Disease encourages an elderly man with CKD5 to get a fistula, discusses how attitude is everything when it comes to dealing with chronic illness.
- On the Road to a Lupus Cure has a video of Julian Lennon and James Scott Cook explaining the story behind and singing the song, LUCY. A portion of the proceeds raised by the song will be donated towards lupus research; Amanda Davenport describes meeting Julian Lennon at the CBS Early Show.
- Really, I'm as Old as I Feel? Rob and his beloved, Anny share a birthday, a very young photo of the birthday boy and girl. (We wish you both many happy, healthy years.)
- I Am. Are you? A woman describes her emotional meeting with the recipient of her husband's kidney; Donate Life Illinois is giving out 40 free pairs of tickets to a private Phil Vassar concert in Chicago on Jan. 6, details here.
- Chronic Chick Talk suggests that men do their holiday shopping online and gives a link to a website that sells nice watches, always a good gift.
- Dialyse This has a meeting set up with a radio personality who wants to interview her for a story, has lost a little dry weight, and isn't sleeping very well.
- Linda Gromko MD kidneycare Linda recommends that caregivers do strength training (weight lifting, resistance training, etc.) to increase physical strength and emotional endurance.
- Precious Bodily Fluids Joel recommends a web service he likes for making booklets; describes a case of tenofovir toxicity and how he came to that diagnosis; discusses the studies on the impact of IV contrast on residual renal function; links to an article on the dietary causes of gout.
- Renal Fellow Network posts on the clinical signs of transplant glomerulopathy; reports the results of last week's poll on IgA Nephropathy, and has next week's poll asking which prominent nephrologists are/were most prominent to the field? Write-ins are acceptable.
- Uremic Frost The Medicines Company announced a voluntarily recall of eleven lots of Cleviprex (clevidipine butyrate) injectable emulsion due to the potential presence of visible particulate matter which has been observed in some vials during a routine annual inspection; a study shows that a higher hemoglobin level was associated with a significant 26% reduced risk of death or the initiation of dialysis, challenging the results of the CHOIR study; recommends UKidney as a resource and found a free online blood pressure log; video of the RPA Public Policy in a Minute.
- UKidney has a post explaining hemoperfusion; and an article on the lifting of Australia's five-year ban on the transplantation of animal cells and organs into humans.
- Pediatric Nephrology has information about a study on "Alternative complement pathway activation in D+ HUS"; and a report on experience with combined liver kidney transplants from a center in Germany.
- Neophron's Senescence describes the seminars and discussions he has had on his cruise, talked to Howard Dean about healthcare reform.
- pkdmom2five celebrates her anniversary, shares photos; photos from "The Messiah."
- Lemonade and Kidneys Ruth suggests her friend Leigh's website for last minute gift ideas.Leigh hand crafts beautiful jewelry and ornaments out of silver and copper, with designs ranging from the demure to the baroque, photos of some of the jewelry.
- The Ballad of Billy The Kidney John reminds people not to overdo their fluid limitations on the holidays and links to a story from the Liver Transplant Unit at Flinders Medical Centre in his new home of Adelaide, Australia.
- ....And Bells on Her Toes The caulking from newly installed windows gives Kelly a headache; shares a really sweet Dear Santa note her daughter wrote.
- The inner game of PKD Richie tells Part 1 of his personal 45-year PKD odyssey.
- Kidney Community Emergency Response has a Q & A with pertinent information about the recall by Sanofi Pasteur of some lots of pediatric H1N1 vaccine; announces the KCER 2010 Summit will be held April 13 in Orlando, Florida.
- Renal BizBlog On Dec. 10, the Medicare Payment Advisory Commission met to discuss dialysis payments, among other topics, and recommended a 0.9 percent composite rate increase for 2011. MedPAC will vote on the recommendation at its January 2010 meeting.
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