By Miriam Lippel Blum
As the year turns, many of the CKD bloggers reflect on the state of their health, joys and disappointments. You may find some inspiration in here for your own struggles or, perhaps, just validation that you are not alone.
Here are the CKD related blogs updated since my last report on 12/30. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Bill links to a news story about Freedom Cruisers Susan and Jeff; NxStage will be blogging cruise updates, as will NxStageUsers.
- Kamal Shah's Blog Kamal has a quick review of his health, work and life in 2009; meets and compares notes with another dialyzor who only dialyzes twice a week and has no comorbidities, Kamal wonders whether all the work he does to manage his disease is worth it.(We're all different, Kamal, and must deal with the cards we are dealt. Your friend is fortunate. Your efforts to take care of yourself and manage your CKD5 are worth it. We're glad you're here and hope that your condition improves.)
- Toastiest Toastie spends New Year's Eve with his pets, feels he didn't accomplish what he had hoped for in the last decade, posts photos of high points for balance.
- Becky Perry writes a short review of her health and dialysis in 2009, now she's back on the PD cycler at night with one exchange during the day and that is working better for her.
- Transplant, Tantrums, & Tiaras Holly had a quiet Christmas, visited her grandmother, best gift was the double-lung transplant for her friend, Jessica; reviews the first lines of all her 2009 blog posts; answers a list of questions about her life in 2009; reviews her last year's goals and sets some new ones for 2010; Holly reflects on her last five years since her diagnosis of kidney failure.
- On the Road to a Lupus Cure reviews lupus advances in 2009 and lists the Lupus Foundation of America's accomplishments.
- Really, I'm as Old as I Feel? Rob reviews 2009 by taking the first sentence from the first post of each months blog entry, welcomes 2010, and notes that he kept his resolution from last year to not eat a doughnut for the whole year, but hopes to have one at brunch on New Year's Day.
- I Am. Are you? Donate Life Illinois wishes all a Happy New Year and reminds everyone to look for the Donate Life float in the Rose Parade.
- The Ins and Outs of Dialysis John and Gayle did dialysis on New Year's Eve and post a great photo to prove it, they resolve to stay healthy in 2010 and get more exercise.
- Linda Gromko MD kidneycare Linda writes about how important it is for caregivers to take care of their own health needs, too, and she makes sure to see her primary care physician, as needed.
- Renal Fellow Network Results from last week's poll, nephrology fellows won the "hardest working fellow in show business" award (No big surprise there.); while in Paris, he stumbles across a plaque commemorating one of the key steps in the invention of ureteroscopy and cystoscopy, has a photo and a link to a free article on the development of the modern cystoscope.
- UKidney A study shows that pre-dialysis transplant recipients with a high level of kidney function do not appear to benefit from their transplant more than pre-dialysis recipients with a low level of kidney function; a differential diagnosis of red urine.
- Pediatric Nephrology A study shows higher mortality among pediatric CRRT patients with fluid overload; announces the 6th International Conference on Pediatric Continuous Renal Replacement will take place in Rome on April, 10, 2010; a study showing that Sevelamer carbonate from Genzyme Co. can be an alternative to Renagel as a phospate binder.
- Diario de diálisis Crónicas (en Español) Journal dialysis - Chronicles (Google translated from Spanish) shares some thoughts that help him put dialysis in a positive light.
- Neophron's Senescence flew an F-16 in a computer simulation with a friend, shares photos from that and family at Christmas.
- pkdmom2five reflects on how the difficulties of 2009 helped her and her family grow spiritually.
- Dialysis and Me shares his list of resolutions for 2010.
- Kidney Notes - Exploring the Intersection of Medicine and Technology links to an article by a physician about what he likes in modern medicine and what he doesn't like.
- Rob and Danielle's Kidney Blog have a new photo at the top of their blog of Rob asleep while dialyzing with their puppy in his arms.
- ....And Bells on Her Toes hated 2009 and hopes 2010 is better, wishes she could fix all that's wrong; shares some amusing antics of their young daughters.
- The inner game of PKD Richie describes his transition to dialysis.
- Biologically Safe Water Filters has an article on endotoxin control for portable reverse-osmosis machines.
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