By Miriam Lippel Blum
The launch of the 2010 Freedom Cruise is spreading hope and inspiration (and some jealousy) through the Dialysphere. Several bloggers have mentioned or linked to it through DSEN or the NxStage site. It is getting dialyzors to dream of future cruises and other travels that might be possible with NxStage. Keep posted to DSEN for future Freedom Cruise updates.
Here are the CKD related blogs updated since my last report on 1/2. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Peter reflects on the barriers that American medicine puts up that deter optimal dialysis in this country; Bill takes off on the Freedom Cruise with a group of NxStage dialyzors; Bill takes us on a video tour of his boat cabin and how he organized his dialysis supplies; a report on the 2nd day at sea, with a link to a video about Jeff and Susan who celebrated their 25th wedding anniversary on the cruise. (Congratulations! What a great way to celebrate.)
- Kamal Shah's Blog Kamal writes about the launch of the Freedom Cruise and how much it inspires him; describes some of the inner workings of constructing an iPhone application.
- Toastiest is concerned he won't be able to change insurance policies because the HR representative has been out of the office.
- The Life of a 20-Something With Lupus Flo posts photos taken in the dialysis unit she went to in Florida.
- Becky Perry reviews The Silent Governess by Julie Klassen and shares the first chapter; posts the first chapter from Faith That Works:A Topical Study of the Book of James by Anne Fortenberry.
- On the Road to a Lupus Cure Belimumab (also known as Benlysta™) reduced lupus disease activity and flares, as compared to placebo in Phase III clinical trials.
- I Am. Are you? recaps the Donate Life float in the Rose Parade, it won the award for Theme Trophy for Excellence in presenting the Parade Theme, “A Cut Above the Rest.,” a link to TV footage of the float so you can see it in the parade.
- Dialyse This learned that vodka gives her heartburn.
- Renal Fellow Network The basics of PD prescription writing; a description of familial juvenile hyperuricemic nephropathy; a differential diagnosis of hypomagnesemia.
- Uremic Frost has the top 10 nephrology stories of 2009 from Renal Business Today.
- UKidney A study from Norway suggests that CKD5 patients older than 70 years old who receive a renal transplant experience a significant improvement in survival compared with remaining on dialysis.
- Neophron's Senescence has a satirical music video critiquing Senator Joseph Lieberman.
- pkdmom2five has some landscape photos and welcomes a new member of her church.
- Lemonade and Kidneys shares delicious photos from the holidays.
- ....And Bells on Her Toes is having trouble potty training her three-year old.
- The inner game of PKD In Part 5 of his "Struggles of a Polycystic Kidney Patient," Richie describes his early dialysis sessions.
- DailyHemo - Home Dialysis Advocates New Videos: Taking Dialysis on a Sea Cruise; NXStage Freedom Cruise - Typical Cabin on Sea Cruiser.
- Encompass Network Partners Statistics on lower leg amputation in the United States.
- Libre Clothing is starting sales later this month, contact them if you have any ideas you would like to see in their dialysis clothing line, they welcome suggestions.
- Bridge of Life shares a thank-you note and photos from the medical director of FUNDANIER - the Guatemalan Foundation for Children with Kidney Diseases.
- Transplant Alliance Gail is having chronic rejection and wonders if she'll get a second transplant.
- PKD & Dialysis ... Where I Tell It Like It Is Da Grandma is feeling tired, wonders whether she should continue blogging but sometimes likes looking back at old posts.
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