By Miriam Lippel Blum
Here are the CKD related blogs updated since my last report on 2/10. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Bill writes about Jean-Louis Clemendot, an amazing PD dialyzor, who successfully made a solo crossing of the Atlantic, while administering his own peritoneal dialysis treatments, Clemendot hopes to continue his adventures by sailing the Panama Canal and the Pacific (We hope to keep you updated regarding his remarkable journeys as they occur); Peter shares his experience trying to get optimal dialysis from his NxStage machine, frustrated with the lack of research and data available to address issues of how to gain the machine's maximum efficiency; the blog report.
- Kamal Shah's Blog Kamal finds out that the atypical Hemolytic Uremic Syndrome that resulted in his renal failure may have been triggered by vaccinations; he gets some new responsibilities at work and is enjoying exercising his creative freedom in fulfilling his tasks.
- Kaply, Inc. Tracy's cable box breaks again and she gets a refund, she loves the olympics and cave- aged gouda cheese; has a bad day physically and is cranky so she posts a card with an incendiary message.
- Toastiest Toastie vents about the noise level at nocturnal dialysis; photos of his pets.
- The inner game of PKD Richie discusses how a "life coach" can assist one in “navigating” the twists and turns of the PKD Odyssey.
- The Life of a 20-Something With Lupus is dizzy and tired from an ear infection, cough/cold, and antibiotics.
- Jack's Kidney Adventure Jack reports that drivers with 4-wheel drive vehicles are needed to get people to dialysis through the blizzard in the Washington DC metro area. He gives links to contact if you can help.
- Transplant, Tantrums, & Tiaras Holly does some radio interviews to campaign for organ donation, she starts her new job next week, will be working two 10-hour days a week.
- On the Road to a Lupus Cure February is Heart Health Month, Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus, links to an article about how lupus can affect your heart and lungs; the Lupus Foundation of America has Valentine's Day eCards to help you spread messages of affection and friendship while helping to increase awareness of lupus.
- Really, I'm as Old as I Feel? Rob, in Maryland, got 27 inches of snow, which gave an opportunity to stay in and work on Abby's toilet training since diapers were in short supply, he posts a picture of Abby in the snow; Rob admits that he doesn't like reading books but he just read a self-help book and intends to review it next week.
- I Am. Are you? has a video about, gold-medal winning Olympic snowboarder Chris Klug who received a lifesaving liver transplant back in 2000.
- Dialyse This Cassie gets sick three hours after taking care of a sick toddler, says this is proof of immune system failure thanks to dialysis.
- Linda Gromko MD kidneycare Linda and a patient who successfully lost weight discuss important attitudinal aspects of how to succeed in a weight loss program.
- Precious Bodily Fluids consulted on a patient with autoimmune hepatitis and acute kidney injury who had the lowest FE-Na (Fractional Excretion of Sodium) he had ever seen; figures out how much sugar is dissolved in total blood volume. (Not a lot when compared with a can of Coke.)
- Uremic Frost Dr. Simon Prince reports that the National Kidney Foundation plans to update its KDOQI Clinical Practice Guideline for Diabetes and Chronic Kidney Disease, which were first published in 2007; despite the company's assurances, Simon's concerns over adverse reactions to Feraheme lead him to switch to another IV iron drug for use in his office; a study shows that a low carb diet can reduce weight and lower blood pressure; a study demonstrated that in the setting of clotting at the venous anastamosis of an AV Graft, the addition of a stent led to improved long term patency as well as freedom from repeat interventions when compared with angioplasty alone.
- UKidney has an article on aquaporins and the kidney.
- Pediatric Nephrology also writes about the study on stent grafts vs. balloon angioplasty for failing dialysis-access grafts; some important points in an NEJM editorial on Fistula First, Stent Graft Second; links to the Fistula First website where you can access audio clips of blood flow through arteriovenous fistulas (AVF) to help dialysis patients and staff learn what to listen for when monitoring the health of vascular accesses; links to a video and an article on how Smartphones can benefit smart pediatricians.
- Nephron Power has a post on a Time magazine article on epigenetics "Why DNA Isn't Your Destiny;" a post re-evaluating the role of immunosupression in proteinuria.
- ....And Bells on Her Toes Kelly relates a story about how Alex lost his wedding ring on their honeymoon; Alex's creatinine is now down to 151 and they hope to take out surgery staples at the next clinic visit; Caitlyn is sick again and has a fever of 102; Kelly gives her review of the Olympics opening night ceremonies.
- My Wife Has Lupus Jeff hopes to post more often about his family's struggles with his wife's lupus. (Jeff, there are lots of caregivers out there who will appreciate your posts. Keep at it. Even if it's not every Thursday.)
- DailyHemo - Home Dialysis Advocates New Videos: Laura's Home Dialysis Setup (PD); Alonzo Mourning Tours Davita Clinic and Greets Patients; Dialysis Patient Success Stories: Volunteering While On Dialysis; Documentary: His Escort to End (Stopping Dialysis).
- Encompass Network Partners The NKF is updating its KDOQI Clinical Practice Guideline for Diabetes and Chronic Kidney Disease.
- Kidney Community Emergency Response has an article on how the international renal community responded to the earthquake in Haiti.
- NephrOnline Blogs In Health Beat, Rebecca Zumoff writes about how the renal community, health care workers and patients, needs to be better prepared for the difficult travel conditions that result from winter storms.
- Life on Dialysis Samiir describes a climbing expedition to a fort on top of a huge rock, he can't climb for fear of endangering his fistula and he forgot his hat so his BP went low from the heat, he had a good time anyway enjoying an amazing view.
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