By Miriam Lippel Blum
Here are the CKD related blogs updated since my last report on 2/16. If you have or know of a blog that should be on the list let Bill know. Comments in parentheses are my reactions or opinions.
- Dialysis from the sharp end of the needle Peter finds that his dialysis related headaches go away now that he is dialyzing 5 days a week with the NxStage System One; the blog report.
- Kamal Shah's Blog Kamal notes that his blog is getting more junk comments, and wonders why; some of Kamal's co-workers start rumors about possible city violence in the hopes of getting a day off.
- Kaply, Inc. Tracy took her old cat to the vet, cat is okay just old, Tracy will be visiting family in New Mexico and looks forward to her Mom's cooking, got a gift of some Olympics red mittens and is very pleased with them.
- Toastiest Toastie reflects on his three years of blogging, compares some of his old attitudes with his current ones; loves Roger Ebert and recommends his blog, reviews, and an Esquire interview with him; a video of how to put the spark back into the relationship with your cat.
- Hasten down the wire reports on the "recellurization" process which is the next best scientific hope for growing one's own kidneys. He has a video interview with Doris Taylor whose lab created a beating animal heart and is now moving ahead with new technology to create other organs.
- The Life of a 20-Something With Lupus Flo's ear infection is affecting her hearing which is scaring her and her hematologist sends her to an ENT specialist after looking in her ears, she has to do a presentation at school and will do it despite feeling so lousy but may have to drop a class because she has missed so many sessions.
- Becky Perry reviews The Pastor's Wife by Jennifer AlLee; Becky has started a new blog for her kidney related posts; at a prayer service, one of her boys gets up to pray for Haiti and her other son prays for his Mom whose small veins cause her grief at the doctor's office; shares a photo of her home-made bread and discusses bread making; lists three things that make her happy.
- On the Road to a Lupus Cure For those going to LFA's 2010 Advocacy Day on Capitol Hill on March 15-16, 2010, a discounted room rate is only guaranteed through Friday, February 19 so register early; it's Walk for Lupus Now season at the Lupus Foundation of America. Monies raised from Walk for Lupus Now Walks will support lupus research, lupus education programs, and patient and family support services, has a link to find an event near you.
- Really, I'm as Old as I Feel? has a cute photo of Abby choosing a reward for her Potty Training success (Yay, Abby!); gives a very positive review of Raising an Emotionally Healthy Child When a Parent is Sick by Paula Rauch and Anna Muriel.
- I Am. Are you? Melissa Simon, heart transplant recipient, shares her thoughts, excitement and anticipation at meeting her donor family for the first time; a Donate Life commercial from Minnesota.
- Chronic Chick Talk Snow days increase her pain from lupus flares; describes her mother's breast cancer experience and reminds women of the importance of yearly mammograms.
- Linda Gromko MD kidneycare Linda marks the anniversary of Steve's failed transplant with sadness about what happened but cautious optimism for what may be in the future.
- Uremic Frost shares the post from Renal Fellows Network about the death of Dr. Nathan Hellman; a study of Chinese PD patients concluded that low dietary salt intake in this population was an independent risk factor for high overall and cardiovascular mortality.
- UKidney A Canadian study found that those with heavy proteinuria but without overtly abnormal eGFR had worse clinical outcomes than subjects with moderately reduced eGFR but without proteinuria; scientists have discovered a molecular pathway that works through the immune system to regenerate damaged kidney tissues and may lead to new therapies for repairing injury in a number of organs; reports on and questions the results of the ACCOMPLISH study which suggested that the combination of benazapril plus amlodipine is superior to benazapril plus hydrochlorothiazide for the prevention of a composite cardiovascular outcome.
- Renal tsar's blog The NICE Guideline on venous thromboembolism (pulmonary embolism and deep vein thrombosis) is highly relevant to all those who work in kidney services as this condition is two times more likely in people with CKD than without.
- Pediatric Nephrology links to Toastie's photo post about how he feels on nocturnal dialysis; links to and welcomes the new blog Kidney Doc Talk; links to a report on good practices for radiologists on Acute Kidney Injury, and also an article by the Renal tsar on the same subject; an article in the NEJM has a case report on a baby with obstructive uropathy caused by Melamine ingestion nephrotoxicity; has Volume V of the Pediatric Renal Grand Rounds; links to a CME presentation on urinalysis.
- Nephron Power A study seems to indicate that blood and marrow transplant nephropathy may really be radiation caused; a clinical case question, answer and review on the cause of an elevated serum ion gap.
- pkdmom2five has a photo of what her husband wrote on the menu board for today's dinner.
- Jean Louis Clemendot (Newest posts are in French at the bottom of the page, copy and paste into Google Translate) Jean-Louis has some articles written about him and will be interviewed on a radio show, he solves a battery problem with his boat, will spend a few days in Martinique with a friend before going back to sea, his friend will accompany him across the Caribbean Sea, Panama and even pass Galapagos and then Jean-Louis will perform solo the Pacific crossing.
- Dialysis and Me Barry starts to prepare an emergency bag to take to the hospital for when he next gets a call for a transplant.
- Kidney Notes - Exploring the Intersection of Medicine and Technology posts his Twitter name so you can get interesting medical links (not just kidney-related) posted automatically.
- Lemonade and Kidneys Ruth has problems with squishy car tires.
- The Ballad of Billy The Kidney relates the inspiring story and attitudes of an extraordinary young man, named Samuel Symons, who suffered cancer as an infant and was not expected to live, then later expected to live with reduced intellectual capacity as a result of cancer treatments - but now is about to start undergraduate life at university.
- ....And Bells on Her Toes A hawk almost crashes into Kelly's car; Kelly is going to Ottawa for a week for a business conference.
- My Wife Has Lupus Jeff tries to figure out how to respond supportively to his wife's repetitive questions.
- Kidney Community Emergency Response FDA and Amgen notified healthcare professionals and patients that all ESAs must be used under a risk management program; the Kidney Community Emergency Response Coalition (KCER) invites you to nominate an individual or organization that has provided outstanding leadership and service to the renal community in disaster preparedness and response.
- Renal BizBlog As the dialysis bundle inches closer to reality, so does the potential approval of Affymax’s new anemia drug Hematide, which could benefit from the new payment structure.
- The Daily Dialysis Bonni finally returns to her blog after a long absence to report that Mark's gall bladder surgery went well and seems to have helped his gastrointestinal problems, he has registered with a transplant program but needs to lose 20 pounds to get on their active list, he now is on a phosphate binder and though Bonni knows he is eating contraband foods she hesitates to nag him as he has lost some weight and, in general, seems to be doing better with food choices.
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