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March 07, 2010

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somerville

If you measure the change in quality of life for the home hemodialysis option, it is important that you measure not only the change in the patient's quality of life but that in the patient's helper. I found that in my experiment with home daily hemodialysis, not only did it greatly magnify the dialysis burden in my own life, but it also threatened the rapid destruction of my wife's career, since there was no way she could perform the part-time job of dialysis assistant as well as handle her own highly-ambitious day job. Perhaps this answers your question about why women have trouble accepting home hemodialysis. It may have to do with husbands being more likely than wives to have highly demanding employment, which makes the role of dialysis helper too damaging to the family unit as a whole.

Enrique

Anonymous Hemodialysis Survey:

I am Enrique Santiago (using my colleague's facebook to spread the word). Having been on hemodialysis for 10 years myself, I am a doctoral student at Columbia University who is decidated to improve health of hemodialysis patients. Basically, I am trying to learn how patients living with End-Stage Renal Disease (ESRD) on hemodialysis adjust, adapt, and cope over time. If you or someone you know are under going hemodialysis, I am kindly asking you to fill out a survey to help us learn what people like you or your friend have learned about the best ways to cope. We want to obtain this information so it can be provided to other patients with ESRD on hemodialysis, perhaps assisting them in coping so they are empowered to engage in the very best self-care, and experience the highest possible quality of life.

I basically need 100 hemodialysis patients to complete a survey for my dissertation study. I would be so very grateful if you could spend 15-30 minutes of your (and your friends') time to complete the survey.

Once 100 people have completed the entire survey, the program will automatically send out Wal-Mart gift certificates (bar coded) to three randomly chosen e-mail accounts ($200, $100 or $75) without in any way linking your identity to the survey results. You can print out the gift certificate, if you are a winner, and use at any Wal-Mart store.

If you can, please go to http://www.surveymonkey.com/s.asp?u=777873157187 ASAP to fill out the survey and pass it on to your friends! I have my official advertisement below which you can copy and paste in your email.

Thank you!!

Enrique Santiago

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