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March 29, 2018

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Gary Peterson

I have heard some nephrologists say that they would not want dialysis equipment and supplies in their home, but instead would choose in-center, nocturnal, every-other-night, extended-time hemodialysis in a bed.

Dori Schatell

“Choose” in-center? That’s assuming a lot of agency and autonomy from folks who are terrified and “educated” (if that even happens at all) using a modality-first approach, rather than a VALUES & LIFESTYLE first approach. Any modality is a means to an end: “Living the life you were meant to have.” (Does that quote sound familiar? ;-)). So, we do most modality education BACKWARD—then wonder why it doesn’t work. It CAN’T work, because fear prevents learning. When adrenaline is pumping, we need to flee, and can’t lay down new memories. So we have to: 1. Offer people hope that they CAN have lives that are worth living, to get them past the fear, 2. Help them figure out which option(s) are most likely to get them there, and then 3. Help them navigate through training and the first few weeks and months of that option, so they succeed. This is exactly why we built My Life, My Dialysis Choice (http://www.mydialysischoice.org)—and our pilot data suggests that it works!

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