Dialysis from the sharp end of the needle: Tracked CKD Blogs

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Here, in no particular order, is the list of blogs that DSEN tracks for the Dialysis and CKD Blog Reports. To get on the list requires only a connection to CKD it does not necessarily mean that the blogs are exclusively about CKD. In fact, if the author is living with CKD the blog does not need to mention kidney's to make the list. UPDATE 2/1/09 Comments are now open - post a link, talk about your blog, ask a question.

CKD Blogs Updated in the Last Three Months (checked on 8/22/11)

Video Blogs

Renal Content Aggregators

Renal Industry Blogs

Allen Nissenson, MD, FACP, Chief Medical Officer of DaVita
Mahesh Krishnan, MD, Vice President of Research, DaVita Clinical Research
Accountable Kidney Care Collaborative (AKCC), formed by DaVita®
Biologically Safe Water Filters
Encompass Network Partners
Kidney Community Emergency Response
Nephrology News & Issues Blogs
- First Word
- The End Point

CKD Blogs Last Updated More than Three Months Ago (checked on 8/22/11)

Tollidee
Are you there Kidney? It's me, Emily!
Joe Dialyzer
Surviving PKD
Nitey Nite- a nocturnal dialysis blog
Birdman
Transplant, Tantrums, & Tiaras
Diario de diálisis Crónicas (en Español) Journal dialysis - Chronicles (Google translated from Spanish)
OH Positive: Rob needs a Kidney Transplant
The Ballad of Billy The Kidney
Neophron's Senescence
Kidney Notes - Exploring the Intersection of Medicine and Technology
The Dialysis Diary
PKD World
My Kidney Chronicles
The inner game of PKD
Kidney in the News
Nephrosphere
My Chronic Kidney Disease
The Ins and Outs of Dialysis
Kevin’s Blog
Dialysis Postings
My Kidney - Stories about Life (and living!) with Bum Kidneys
KIDNEYBLOG

CKD Blogs Last Updated More than One Year Ago

Comments

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Hey Bill ~ are you following too many blogs to continue your practice of making a one-sentence review of their recent posts? I really liked that feature of your work...

Posted by: jack nowicki | February 08, 2009 at 06:43 AM

Nevermind! I just read your reviews. Somehow lost them for a minute. DUH. JN

Posted by: jack nowicki | February 08, 2009 at 06:47 AM

I'm glad you like the Blog Reports Jack. The list is growing and I'd say that those listed are posting more so tracking it all has become a bigger job. The point is to encourage and connect online participation so more is good.

My strategy for dealing with the growth is to try to do three reports a week because after four days (like yesterday's report) there is a lot of ground to cover.

The other strategy is to get others to do reports. I can get Anna to do them when I beat her at Scrabble, maybe I can get other guest blog reporters too.

Posted by: Bill Peckham | February 08, 2009 at 08:54 AM

Hi! It's nice to know that there are people like you spreading the news of Kidney Disease. I'm a CKD patient from the Philippines and I have a blog, Dialysis Postings, that serves as a journal of life in dialysis. Looking forward to reading more of your articles. More power!

Posted by: julius | April 26, 2009 at 05:45 PM

Hi, I have polycystic kidney disease as well as a bunch of other chronic conditions, and have started a blog on things to do with PKD especially as related to being an e-patient, online communites, and surrounding issues. And also some uniquely Australian issues, as that's where I live. It's at http://pkdnotes.wordpress.com.

Posted by: PKD Notes | May 08, 2009 at 09:21 AM

I started a blog for my husband recently who has been back on dialysis for almost 5 years. I'd love for it to be added to you list if you see fit.

http://unfilteredhope.blogspot.com

Thank you!
Sara

Posted by: Sara | June 11, 2009 at 11:27 AM

Bill

I am a nephrologist in Brazil. I have been writting a webpage for nephro people (phisicians, nurses, patiwents)since 1999 and it is called Medonline.
There are some interviews in english but the majority of text is in portuguese language. If you want to put the adress of this page in your list, I would appreciate very much.

Posted by: Sebastião R Ferreira-Filho | September 26, 2009 at 07:35 AM

Dr. Ferreira-Filho I have added MED Online to the List of CKD Resources.
Thanks.

Posted by: Bill Peckham | September 29, 2009 at 07:59 PM

Hi, I'm a dialysis patient and I blog about the experience of the treatment and going through the transplant process. Check it out @ http://kidneytimes.blogspot.com/.

Posted by: Jason Tully | November 09, 2009 at 09:57 AM

Hi Bill

I am a pediatric nephrologist from India. I have made a Blog for dissemination of information to patients, fellows and physicians.

I am linking your wonderful blog, please do link me in this blog's list

Regards
Dr Sidharth Sethi
www.pediatric-nephrology.com

Posted by: Dr Sidharth Sethi | December 09, 2009 at 03:35 AM

Can you provide me your perspective on the service and care quality on
parameters such as patient care/comfort, staff behavior, clinical
environment, infrastructure of the clinic, cost-effectiveness, patient
trust, transparency in operations and value added services (such as meal
planning, health plan guidance etc.) of various renal service providers
which include: Fresenius (Nephrocare), B. Braun Avitum, Diaevrum and IDC.

I am eagerly look forward for your reply.

Best regards,

Nipun Jain

Posted by: Nipun | December 21, 2009 at 10:19 PM

Hey Bill
Thanks for Linking Nephronpower to your list
Love your blog

http://www.nephronpower.com;
http://onlinetransplantcenter.blogspot.com/

Posted by: Kenar Jhaveri | February 13, 2010 at 04:21 AM

Hi Bill.

Here at East Carolina University, we've created an evidence-based teaching website in Nephrology. It is targeted towards physicians, trainees, physician extenders, and patients. Take a look at our site and perhaps we can work together to spread the word on kidney disease treatments and preventions.

http://www.nephrologyondemand.org

Thanks.

Posted by: Tejas Desai, MD | March 10, 2010 at 05:48 AM

Hey Bill, Wondering if my Blog could be included?

Posted by: Joe Macomber | March 16, 2010 at 11:48 PM

Hi Bill,
Do you have any blogs specifically written by dialysis nurses or social workers? - Shari G

Posted by: Shari G | March 26, 2010 at 03:20 PM

I use to track As the Pump turned but Kim moved on - do you have one for me?

Posted by: Bill Peckham | March 26, 2010 at 09:36 PM

No, I couldn't find any.

Posted by: Shari G | March 26, 2010 at 11:13 PM

Great sight. Especially enjoyed reading Ann Bennett's account of her transplant as I received mine just a couple days before she did. Everything has gone great until I had a confirmed diagnosis of BK Virus a month ago. I was surprised that I had not heard of it, since it primarily affects those with Renal Transplants.

I have posted my experience with PKD, dialysis transplant and now BK Virus on survivingPKD.blogspot.com.

Thanks for your work.

Posted by: David Waddington | July 20, 2010 at 09:21 PM

This site was a great find. My boyfriend is in stage 4 CKD - FSGS. We recently decided to blog about our journey, as we move through the process of evaluation to be put on the transplant list and beyond. I am new to the world of CKD (as well as new to blogging) and have been attempting to research and read as much as possible. This site is fantastic for helping organize a community of people. Thank you!

Posted by: Yomi | February 01, 2011 at 02:35 PM

Do you want to share your URL Yomi? Or is your blog already listed? I am trying to keep the list going even as the blog reports are on hiatus. Keep the URLS coming.

That said I somehow over looked your comment David. I think I was rafting at the time (: .. Surviving PKD has been added. If I do this again, if you post your URL and nothing happens, something has gone wrong with my communication systems, aka I spaced, please try again.

Posted by: Bill Peckham | February 05, 2011 at 10:41 AM

Hello Bill,

I'm an interventional radiologist in Jacksonville, Florida. A big part of my practice is management of dialysis access (catheters, fistulae and grafts). I'm writing to you though with a different cap on, that of product developer. I really was troubled by the condition of the dialysis catheters I was changing for infection/poor flow rates -- mainly the problem of adhesive sticking to the catheter and then catching dirt, fibers, hair, etc., I spent a few years just working with different ideas, but finallly was able to get my act together and design and find a manufacturer for a pretty slick, comfortable and antibacterial cover which I think will be a true service. I'll be debuting the product (an my new attempt at being a businessman/salesman?) at the National Kidney Foundation meeting this April.

I'm not sure of the appropriate etiquette for your blog so please don't post this if it's not appropriate for your site -- just delete it. Otherwise, my website should be live in the next week or so if you'd be interested to see the cover (http://roocathetercovers.com) Best wishes,

Shannon Beardsley, MD

Posted by: Shannon Beardsley, MD | April 03, 2011 at 12:02 AM

Dr. Beardsley,

The link to your site above has typo errors and so doesn't work. The corrected URL is

http://www.roocathetercovers.com/

Good luck with your venture.

Miriam Lippel Blum

Posted by: Miriam Lippel Blum | April 03, 2011 at 12:29 PM

Hi Bill,

I started hemodialysis a little over six months ago and found this site through the I Hate Dialysis message board, This site is a great resource and I visit once a week to get caught up.

Recently I felt the need to write about my own experiences with kidney failure at http://www.thezackchonicles.com posting regularly, if not in quantity. (The family was getting tired of my focus on dialysis!) I try to approach dialysis as a good thing, which it has been for me, and provide relevant information for anyone who finds the site.

Hope you have a chance to visit — the light will be on.

Later,

zack

Posted by: Gary Smith | May 17, 2011 at 04:36 AM

My 92 year old (almost) is facing dialysis and I need to know of any draw backs. I'm fighting my sister on whether to have her have the treatment. Sis is convinced the treatments would be "worse than hell". I can't believe that.
Thanks,
Jane

Posted by: Jane Ingram | May 19, 2011 at 02:04 PM

Really useful site, thanks Bill. My own blog on CKD is coopersway.wordpress.com

Posted by: Coopersway.wordpress.com | January 05, 2012 at 01:39 AM

I am that former student who could not donate to Jerry. I was devastated when I was informed I was eliminated as a donor. I was working with Jay and Jerry in hopes of spreading the word on donating organs to people in need. I pray Jerry will get the kidney he needs and Jay's work will help get the word out about donating. Thanks for the story.

Posted by: Priyanka | February 20, 2012 at 02:19 AM

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Dialysis from the sharp end of the needle

tracking industry news and trends, in advocacy, reimbursement, politics and the provision of dialysis

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